A COMMUNITY OF SECRETS: STIGMATIZATION OF FORMER HANSEN’S DISEASE PATIENTS AND THEIR GENERATIONS IN KAMPUNG SINAR BARU, SARAWAK, MALAYSIA
DOI:
https://doi.org/10.33736/jbk.623.2017Abstract
In the early 19th century in Sarawak, Hansen’s disease or leprosy became a reportable disease where the unfortunate victims were forcibly segregated to a leprosarium, leaving behind family, relatives and future. The image of claw hands or toes and rot noses were associated with the unclean and the sinful. This chronic transmissible affliction made a great panic to the state government to ostracize sufferers in an isolated settlement back in the 1920s. Fortunately, the infection can be cured but negative attitudes towards the former leprosy patients persist until now. This paper is based on ethnographic work that explores the stigma experienced and challenges faced by former leprosy patients and their generation. The research findings are based on three months of fieldwork with seven former sufferers and three children of former sufferers who live in Kampung Sinar Baru, Kota Padawan, Sarawak, a resettlement village for the former leprosy patients. The findings reveal their dreadful past experiences on compulsory segregation in Rajah Charles Brooke Memorial Hospital (RCBMH) where they were forced to be separated from family and hometown which still haunt them till today. In addition, former patients suffer mental health consequences and humiliation from the effects of treatment and also from visible deformities. Nevertheless, they believe that the stigmatization is less severe now than in the past and empathy from society makes them become more independent.
Downloads
Published
How to Cite
Issue
Section
License
-
Copyright Transfer Statement for Journal
1) In signing this statement, the author(s) grant UNIMAS Publisher an exclusive license to publish their original research papers. The author(s) also grant UNIMAS Publisher permission to reproduce, recreate, translate, extract or summarize, and to distribute and display in any forms, formats, and media. The author(s) can reuse their papers in their future printed work without first requiring permission from UNIMAS Publisher, provided that the author(s) acknowledge and reference publication in the Journal.
2) For open access articles, the author(s) agree that their articles published under UNIMAS Publisher are distributed under the terms of the CC-BY-NC-SA (Creative Commons Attribution-Non Commercial-Share Alike 4.0 International License) which permits unrestricted use, distribution, and reproduction in any medium, for non-commercial purposes, provided the original work of the author(s) is properly cited.
3) For subscription articles, the author(s) agree that UNIMAS Publisher holds copyright, or an exclusive license to publish. Readers or users may view, download, print, and copy the content, for academic purposes, subject to the following conditions of use: (a) any reuse of materials is subject to permission from UNIMAS Publisher; (b) archived materials may only be used for academic research; (c) archived materials may not be used for commercial purposes, which include but not limited to monetary compensation by means of sale, resale, license, transfer of copyright, loan, etc.; and (d) archived materials may not be re-published in any part, either in print or online.
4) The author(s) is/are responsible to ensure his or her or their submitted work is original and does not infringe any existing copyright, trademark, patent, statutory right, or propriety right of others. Corresponding author(s) has (have) obtained permission from all co-authors prior to submission to the journal. Upon submission of the manuscript, the author(s) agree that no similar work has been or will be submitted or published elsewhere in any language. If submitted manuscript includes materials from others, the authors have obtained the permission from the copyright owners.
5) In signing this statement, the author(s) declare(s) that the researches in which they have conducted are in compliance with the current laws of the respective country and UNIMAS Journal Publication Ethics Policy. Any experimentation or research involving human or the use of animal samples must obtain approval from Human or Animal Ethics Committee in their respective institutions. The author(s) agree and understand that UNIMAS Publisher is not responsible for any compensational claims or failure caused by the author(s) in fulfilling the above-mentioned requirements. The author(s) must accept the responsibility for releasing their materials upon request by Chief Editor or UNIMAS Publisher.
6) The author(s) should have participated sufficiently in the work and ensured the appropriateness of the content of the article. The author(s) should also agree that he or she has no commercial attachments (e.g. patent or license arrangement, equity interest, consultancies, etc.) that might pose any conflict of interest with the submitted manuscript. The author(s) also agree to make any relevant materials and data available upon request by the editor or UNIMAS Publisher.
